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Newsletter february 08

PDSG newsletter
Welcome to this month’s Pick’s Disease Support Group Newsletter
• Peter Moore tells us all about the
• Events Diary - make sure you book
February 2008
• Duncan Hutchison updates us on
• Julian Taylor & Margaret Rees
www.pdsg.org.uk
ANNUAL SEMINAR PICK’S DISEASE SUPPORT
FRONTOTEMPORAL DEMENTIA
(including Pick’s disease) STUDY DAY
WOLFSON LECTURE THEATRE
NORWEGIAN CHURCH ARTS CENTRE
NATIONAL HOSPITAL FOR NEUROLOGY
HARBOUR DRIVE, CARDIFF BAY,
AND NEUROSURGERY
QUEEN SQUARE, LONDON WC1N 3BG
18th MARCH 2008
26TH MARCH 2008
An opportunity for all those with a personal or professional So many kind, distinguished speakers are giving their time to interest in frontotemporal dementias (Pick’s disease) to get us up to date with what is happening. Topics include learn more about the conditions and to discuss best descriptions of the illnesses, genetics, research, supporting children as well as Professor Fox being willing to answer any question that we throw at him. We will also hear from carers and members of the PDSG.
Pick’s Disease Support Group Carol Jennings10.40 Clinical overview of Pick’s disease Robin Corkhill Please come and support the PDSG. Registration is at 9.00 11.10 Language problems in Pick’s disease and the lectures are from 9.30 until 4.30pm. There will be a break for lunch and sandwiches etc. can be bought locally. 11.40 Behavioural problems in Pick’s disease What happens and how to cope Tony Bayer The Registration fee is £40 for professionals and £25 for 1.30 Genetics, research and new treatments Huw Morris For further details and inscription please contact Carol 2.00 What help is available? – (speaker about benefits Jennings e-mail: [email protected] or phone: 0845 services, patient support, carer support etc.) 2.30 A carer’s perspective3.00 Questions and close For further details contact Mrs Heather Copeland email: [email protected], phone: 029 20716977 or fax No. 029 20704244 Val Bywater and Bob – No
Whingeing
done to make life a little less difficult.
doors and saying I don’t love him.
laughter, live cello and tasty food.
he has, quite literally, no level of reasoning or logic left. Dementia, achieving. She deserves a PDSG gold medal! Margaret Rees
Julian Taylor
along with Heika, Vida, Jeff, Kathy, Sue Peter Moore.
experience.
My wife was diagnosed with PPA in 1.2.2 Mobility component
Applications should be made as soon as possible, as claims qualify from the 2. CARERS ALLOWANCE
2 . 1 M a x i m u m B e n e fi t :
£48-65/week
THE COSTS OF CARE
disability’, who is already in receipt of 2.2 Adult de penda nt ’s
addition
A L L O W A N C E S
1.1 Attendance Allowance
BENEFITS
(For patients aged over 65
1. ATTENDANCE ALLOWANCE
o r D I S A B I L I T Y L I V I N G
3.INCAPACITY BENEFIT AND
ALLOWANCE
STATUTORY SICK PAY
actually receiving the required care.
The Benefits and Health
Information Service This free
Current Rates (per week)
3.1 Statutory Sick Pay
1 . 2 D i s a b i l i t y
Allowance
3.2 Incapacity Benefit
1.2.1 Care component (per
Fully funded NHS care (also
known as Continuing NHS
See: Benefits and Health Information Direct payments
Duncan Hutchison
Scotland - Mrs Elaine Anderson 01292 442 273 (Contact for Carers of Alcohol Related Dementia) Mersey & North West - Mrs Mary Dawber Carol Jennings - Adviser 1 Honeybourne Close, Mount Nod,

Source: http://www.ftdsg.org/pdf/55.pdf